Ataxia and me-Is this the most serious condition you have never heard of?
As social media coordinator for Ataxia and Me, I am excited to announce our new Ataxia-Aware project!
Affecting at least 1 in every 50,000 people, this projects aims to to raise awareness for Ataxia and better peoples understanding of the condition.
Ataxia is derived from the Greek word meaning “lack of order”. It is a rare condition which affects co-ordination, speech and balance. Ataxia is usually caused by damage to the cerebellum in the brain, spinal cords, other nerves, it can also be inherited by a faulty gene. It isn’t always known how the damage is caused and a lot of times it is misdiagnosed, so it is important to be #AtaxiaAware.
#DidYouKnow there is no cure for Ataxia, instead treatment involves helping the symptoms, including speech therapy or physiotherapy.
#DidYouKnow Ataxia and Me is a patient focused group- patients helping patients- helping pharma
#DidYouKnow that International Ataxia Awareness day is on the 25th September
Although we are based in South Wales, since undergoing this project we have managed to create a global reach with audiences across 20 different countries. An achievement both myself and Alan Thomas, founder of Ataxia and Me are very proud of. Below are all the countries we have managed to reach as of June 12th 2019.
So what can you expect from the Ataxia- Aware project?
Without giving too much away we have lots of exciting things to come along with this new project. If you also want to get involved please visit out 'Downloadable Content' page to download our posters, take a 'selfie' with them and upload to social media using #ataxiaaware. Also make sure to tag us, our social media links are:
Watch this space for updates on our project!
> Beth Soden