My 427 mile trike ride with Ataxia
As part of the Ataxia Aware project we are sharing personal accounts of those suffering with Ataxia or other rare conditions. We want to provide a safe space for people to talk about their experience with disability, whether themselves or someone close to them.
For the past 6 years, my summer vacation has been taking the
last full week in July and participating in this little ride called
RAGBRAI. For those that don’t know, RAGBRAI stands for
Registers Annual Great Bike Ride Across Iowa. (The event was
created by the Des Moines Register, which is our statewide
newspaper.) Some people think that I am nuts and out of my
mind, but that is o-kay. I have so much fun participating and
riding. Six years ago, I joined a group called Adaptive Sports
Iowa. One of their missions and goals is to bring fun, excitement
and exercise to enhance the quality of life of amazing athletes
with physical disabilities in Iowa. Even though I am not
physically able to ride every mile, I make the most of it and
make goals for myself and reach milestones.
The week started on Sunday, which was a rainy and miserable
day. It was a short day, but I came in looking like a drowned rat.
I had only ridden once in the rain like that before, and I am
hoping that I never have to ride in weather like that again.
Monday was definitely a milestone day for me. I have never
been able to ride a full day before, but I rode a full day AND it
was my longest ride that I have done in one day. 74.2 miles.
Needless to say, I felt pretty darn proud of myself.
At the meeting town, which is usually about halfway (distancewise)
during the days ride, ASI will have our walkers,
wheelchairs, scooter, and yes, even feet so that we can spend
some time out of the bike and move around freely.
The rest of the week was a blur to me and pretty normal and
uneventful (at least my type of normal). The ride was
challenging for a variety of reasons, one of the main reasons is I
am not the most graceful getting up and walking around from a
trike ,or at all for that matter. Luckily we have buddy riders that
ride with us, talk to us during the ride, encourage and motivate
us up hills, and help us to move about on two legs. By the end of
the week we are all one big family, some people you have just
met at the beginning of the week and others are already family
from previous years. By the end of the ride, I was so tired and
sore, but I am already on a countdown and can not wait to do it
again next year!
We would like to thanks to Emily for sharing his inspirational story with us. It is important to stay #ataxiaaware. If you'd like to know more about her be sure to follow Facebook Emily https://www.facebook.com/emily.medina.587
If you would also like to get involve and share your experience with Ataxia or other rare condition, please get into contact with us through our social media linked below: Twitter: @Ataxia_and_Me Instagram: @Ataxia_and_Me Facebook: https://www.facebook.com/AtaxiaandMe/
Media Coordinator for Ataxia and Me