We have been busy with Ataxia awareness at conferences (even co-moderating a workshop on Expanded and Early Access to Medicines) over the last 2 weeks.
We have added some more Ataxia aware photos the gallery.
Keep a lookout for our media coverage (and 2 Ataxia awareness posters) live from the World Orphan Drug Congress in Barcelona (this is the fourth year that we have been included!)
We are still looking for volunteers!! If you have #ataxia or are caring for someone with the rare condition and are open to writing a short blog post sharing your experience (this can be anonymous or not) please contact us through one of the following social media platforms: